Thank you for donating and helping me reach my Walk to Defeat ALS fundraising goal! The Walk to Defeat ALS raises funds to support those affected by ALS and to spread awareness of the urgency to find treatments and a cure.
Emma, who also goes by Weirdli online was diagnosed in 2021 after her mother had noticed her limping and dragging her foot. After multiple doctor visits and  referrals, in January of 2021 at the age of 19 she was informed that she has ALS. Although slow in progression it has drastically changed her life from taking time off of school to having to reroute her entire life. Despite this horrible diagnosis she has been able to draw out incredible and once in a life time events. She’s met many new people and explored many new places as well as formed many new relationships with people who are in a similar position  

Amyotrophic lateral sclerosis (ALS) is a progressive, fatal neuromuscular disease that slowly robs the body of its ability to walk, speak, swallow and breathe. The life expectancy of a person with ALS averages 2 to 5 years from the time of diagnosis. ALS can strike anyone, and presently there is no known cause or cure. 

That’s why I’m walking. To change the statistics. To bring help and hope to those living with the disease. To support the caregivers who help their loved one fight this disease.   To ensure that no one ever hears the words: “You Have ALS” again!  

The past two years have brought incredible advancements in ALS research, expanded access to care for people living with ALS, and enabled legislation that impacts the quality of life of people with ALS and their families. 

But, we can’t stop now! The key to a cure starts with all of US.  Please consider walking with me or making a donation to my team. With your help, we will be able to make a difference in the lives of people affected by this disease.