It has been 10 years since Kay participated in her first Walk to Defeat ALS in 2014. And five years since she's been gone from us all - way too soon. Kay lived for 6 years with this disease and made the most out of her time. There were many celebration weekends with walkers coming to Tucson from all over. This year we're excited to see some of Kay's "Rowdie" college friends back in town.  We will be walking as long as it takes - until there are better treatments and a cure.  

I miss my sister every single day. As do our family and friends. Please see Kay's Shining Stars Facebook page for some of Kay's writing that inspired so many.   

Thanks to everyone participating and walking wherever you may be on October 26, 2024! You are all Shining Stars!

Marcia Silkensen

Thank you for donating and helping me reach my ALS Walk fundraising goal! The Walk to End ALS raises funds to support those affected by ALS and to spread awareness of the urgency to find treatments and a cure. 

Amyotrophic lateral sclerosis (ALS) is a progressive, fatal neuromuscular disease that slowly robs the body of its ability to walk, speak, swallow and breathe. The life expectancy of a person with ALS averages 2 to 5 years from the time of diagnosis. ALS can strike anyone, and presently there is no known cause or cure. 

That’s why I’m walking. To change the statistics. To bring help and hope to those living with the disease. To support the caregivers who help their loved one fight this disease.  To ensure that no one ever hears the words: “You Have ALS” again!  

The past few years have brought incredible advancements in ALS research, expanded access to care for people living with ALS, and enabled legislation that impacts the quality of life of people with ALS and their families. 

But, we can’t stop now! The key to a cure starts with all of US. Please consider walking with me or making a donation to my team. With your help, we will be able to make a difference in the lives of people affected by this disease.