Thank you for visiting my fundraising page and for supporting Craig’s Crew in the ALS Walk. Amyotrophic Lateral Sclerosis (ALS) is a progressive neuromuscular disease that affects the nerve cells responsible for controlling voluntary muscle movement. As the disease progresses, it affects a person's ability to walk, speak, swallow, and breathe. There is currently no cure.

In October 2025, I was diagnosed with ALS. Since then, my life has changed in ways I never could have imagined. What began as muscle twitches and a foot drop progressed to needing a cane, then a walker, and eventually a wheelchair. I am now also experiencing a gradual loss of mobility in my arms.

Losing my independence has been one of the hardest parts of this journey.

After spending the summer at our cabin in Wisconsin, Sue and I are back in Arizona, where the warm weather helps me feel better than the cold Minnesota winters. Being back also means we're close to Greta and Jalen, and we get to see them regularly. They help with projects around the house. We're grateful for the time we get to spend together and the everyday moments we can share as a family.

We are fortunate to have access to several pools in our neighborhood, and I've recently started aquatic therapy in addition to my weekly physical therapy. Sue and I still make time for our daily walks around the neighborhood with our dog, Wylie. Staying active, spending time together, and enjoying life with family remain important parts of our routine as we navigate the changes ALS has brought to our lives.

Living with ALS also means ongoing appointments and care. Every three months, I spend an entire day at Mayo Clinic meeting with my ALS doctor and care team. These appointments include respiratory therapy, speech pathology, occupational therapy, palliative care, lab work, and ALS Arizona. This comprehensive care helps address the many challenges of living with ALS and allows my team to monitor changes and support my needs.

I am also participating in a clinical study at Mayo Clinic for an experimental drug intended to slow the progression of ALS. Access to this study was extremely limited, with approximately 200 participants. I am grateful for the opportunity to be part of this research, but the reality is that we need so much more.

The progress in ALS research has not been enough. People continue to lose mobility and independence, while families face the difficult realities of this disease alongside them. We need more research, more funding, and a much greater sense of urgency. People living with ALS cannot afford to wait.

The ALS Walk raises funds to support research, improve access to care, and provide resources for people living with ALS and their families. More funding means more opportunities to investigate potential treatments, advance clinical trials, and move closer to a cure.

Please consider making a donation to support our fundraising efforts. Every contribution helps move ALS research forward. We need treatments that can slow the progression of this disease, preserve independence, and give people living with ALS more time. We need a CURE!

Thank you to our family, friends, and everyone who continues to stand beside us. Sue and I are grateful for your support and for everyone who takes the time to learn about ALS and contribute to the fight for better treatments and a cure.